Organizational resources: Part II
Organizational resources:Part I
We at www.therubins.com realize how important state-of the-art information is to the elderly to be able to work in collaboration with their treating physicians or just to understand the changing nature of the basic and clinical sciences. Our goal is to provide as much of this information as is available to us. We also realize the importance of tapping into other legitimate sources. Hence, you will see many links to other sources in many of our articles as well as tables that list multiple resources.
(7/3/08)-A source for financial assistance in cases of high-cost cancer therapies is the Patient Advocate Foundation (www.patientadvocate.org or 800-532-5274) whose mission is "to safeguard patients through effective medication assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life-threatening or debilitating diseases."
(3/10/07)- Countless individuals suffer from sleep disorders. We at therubins received an email from the Webmaster at Sleep Disorders Guide, took a look at the site, and found that it might be helpful to any or our viewers with this type of problem.
Title: Sleep Apnea - Sleep Disorders Guide
Url: http://www.sleepdisordersguide.com/sleepapnea
Description: A comprehensive information guide about sleep
disorders. Descriptions, symptoms, causes, treatments of various
sleep disorders like
sleep apnea, insomnia, snoring, restless legs and narcolepsy.
(2/04/07)- Wayne Lundy of the Better Information Group emailed therubins about the publication of its most recent guide, Aging with a Plan. The guide is: "A resource for families to plan for medical, financial, legal and emotional issues they will be facing with an aging family member."
(10/2/06)- We recently received an email from one of our viewers about an article she and David Petersen had written concerning a "handicapped accessible bathroom" for her grandparents. We visited the site and found it to be an excellent one. The following is a copy of the email along with a link to the site. We think you will find it quite useful for its purpose:
From: Becca
Joyce
To: hrubin12@nyc.rr.com
Sent: Monday, September 25, 2006 11:33 PM
Subject: Accessible living
Hello,
I am a fan of your website and the
support you provide for the elderly. In the process of designing a handicapped accessible
bathroom for my grandparents, I decided to write an article with
some ideas and pictures of the accessible bathroom ideas I found.
I am hoping that you will post a link
to my article on your website: http://www.wasauna.com/handicap-bathroom.html
Thank you!
Sincerely,
Becca Joyce
beccaj@kpxtractors.com
(10/17/05)- One of our readers wrote with a suggestion that we try to focus some of our tables on one area of information to make it easier for our readers to find that information. Following through on this suggestion, we are starting a whole series of tables that will appear from time-to-time under specific headings that will pull together many of the disparate resources we have listed in the articles on our web site. We feel quite comfortable in recommending these sites. If any of our readers knows of some reason the site should not be included in our list, as well as sites that should be included, please let us know.
A list of health information resources;
Resources |
Description |
Web site |
| PubMed/MEDLINE | References including abstracts from thousands of biomedical journals | http://ncbi.nlm.nih.gov/entrez/query.fcgi?DB=pubmed |
| Better Information Group | Planning for an aging family member | http://www.big-zone.com |
| PubMed Central | Free digital archive of biomedical and life sciences journal literature | http://www.pubmedcentral.gov/ |
| Clinicaltrials.gov | Patient studies for drugs and treatment | http://clinicaltrials.gov |
| MedlinePlus | Health information for patients, families, and health care practitioners | http://medlineplus.gov |
| TOXNET | Network of databases on toxicology, hazardous chemicals, and environmental health | http://toxnet.nlm.nih.gov/ |
| Unified Medical Language System | Electronic knowledge sources and associated lexical programs | http://nlm.nih.gov/research/umls/ulmsmain.html |
| National Center for Biotechnology Information | Databases and tools for data mining, including BLAST and the Molecular Modeling Database | http://www.ncbi.nih.gov/ |
| GenBank | An annotated collection of all publicly available DNA sequences | http://ncbi.nlm.nih.gov/Genbank/GenbankSearch.html |
| Online Mendelian Inheritance in Man | Catalog of human genes and genetic disorders | http://ncbi.nlm.nih.gov/entrez/query.fcgi?db=OMIM |
| Cancer Genome Anatomy Project | Generates the information and technological tools needed to decipher the molecular anatomy of the cancer cell | http://ncbi.nlm.nih.gov/ncicgap |
| Organization | Address | Telephone | Description | |
| USDA Food and Nutrition Information Center (FNIC) | 10301 Baltimore Ave., Room 105, Beltsville, MD 20705-2351 | 1-301-504-5719 | www.nal.usda.gov/fnic | The FNIC website provides over 2000 links to current and reliable nutrition resources. |
| Aging with Dignity | PO Box 1661, Tallahassee, FL 32302-1661 | 1-888-594-7437 | www.agingwithdignity.com | This group provides an easy-to-read advance care planning document called Five Wishes |
| Centers for Disease Control and Prevention (CDC) | www.cdc.gov/aging/index.htm | The CDC has resources on nutrition and physical activity for older adults | ||
| Eldercare Locator | 1-800-677-1116 | www.eldercare.gov | The Eldercare Locator offers referrals to information on services to seniors. | |
| Getting Around Safe & Sound and Granddriver | 4301 Wilson Boulevard, Suite 400, Arlington, VA 22203 | 1-703-522-4200 | www.aamva.org/drivers/drv_AgingDrivers.asp | The American association of Motor Vehicle Administrators sponsors two programs designed to educate aging drivers and their caregivers. |
| Medicare Rights Center | 1460 Broadway NY, NY 10036 |
1-212-869-3850 | www.medicarerights.org | Information on financial assistance |
| National Center on Elder Care | 1201 15th St., suite 350, Washington, DC 20005-2842 | 1-202-898-2586 | www.elderabusecenter.org | This consortium of organizations provides information about and conducts research on elder abuse. |
| National Council on Aging | www.benefitscheck.org | The council online resource offers a searchable list of programs that can help with health care costs. | ||
| National Hospice and Palliative Care Organization | 1700 Diagonal Road, suite 625, Alexandria, VA 22314 | 1-703-647-8508 Fax-703 837 1233 1-800-658-8898 |
www.caringinfo.org | Information on end-of-life care Many of the resources and publications that were available on the Partnership for Caring are now on this site. |
| National Institute of Health | www.ClinicalTrials.gov | Information about federally and privately supported clinical research | ||
| National Institute on Aging (NIA) | Information Center, PO Box 8057, Gaithersberg, MD 20898 | 1-800-222-2225 TTY: 1-800-222-4225 |
www.niapublications.org | The NIA offers a free booklet showing older adults how to start and stick to effective program of stretching, balance, and strength-training exercises |
| Nursing Home Compare | www.medicare.gov/nhcompare/home.asp | Medicare provides an online resource with detailed information about the past performance of every Medicare certified nursing home in the country. | ||
| Patient Advocate Foundation | 1-800 532 5274 | www.patientadvocate,org | Mission is "to safeguard patients through effective medication assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life-threatening or debilitating diseases." | |
| Pharmaceutical Research And Manufacturers of America (PhRMA) | 1100 Fifteen St. NW, Washington, DC 20005 | 1-202-835-3400 | www.helpingpatients.org | Many pharmaceutical companies offer reduced medication fees for patients who meet income requirements and other criteria. PhRMA has compiled the Directory of Prescription Drug Patient Assistance Programs |
| Sexuality Information and Education Council of US | 130 West 42nd St. suite 350, NY, NY 10036-7802 | 1-212-819-9770 | www.siecus.org/pubs/biblio/bibso0012.html | This organization publishes an annotated bibliography, Sexuality in Middle and Later Life. |
| The Simon Foundation for Incontinence | Box 835-F, Wilmette, IL 60091 | 1-800-237-4666 | www.simonfoundation.org/htm | The Foundation provides information about cure, treatment, and management techniques for incontinence |
| Family Caregiver Alliance | 690 Market St., suite 500, San Francisco, CA 94104 | 1-415-434-3388 | www.caregiver.org | The Alliance offers programs to support and sustain caregivers |
| Alzheimers Disease Education and Referral Center (ADEAR) | PO Box 8250, Silver Spring, MD 20907-8250 | 1-800-438-4380 | www.alzheimers.org | NIA funds ADEAR to provide information, publications, referrals, a health information database, and a clinical trials database for the public and health care professionals |
FOR AN INFORMATIVE AND PERSONAL ARTICLE ON PRACTICAL SUGGESTIONS WHEN SELECTING A NURSING HOME SEE OUR ARTICLE "HOW TO SELECT A NURSING HOME".
Compiled by Harold Rubin, MS, ABD, CRC, Guest Lecturer
updated July 3, 2008
To e-mail: hrubin12@nyc.rr.com or rubin@brainlink.com