TheRubins.com

Organizational resources: Part II
Organizational resources:Part I

We at www.therubins.com realize how important state-of the-art information is to the elderly to be able to work in collaboration with their treating physicians or just to understand the changing nature of the basic and clinical sciences. Our goal is to provide as much of this information as is available to us. We also realize the importance of tapping into other legitimate sources. Hence, you will see many links to other sources in many of our articles as well as tables that list multiple resources.

(7/3/08)-A source for financial assistance in cases of high-cost cancer therapies is the Patient Advocate Foundation (www.patientadvocate.org or 800-532-5274) whose mission is "to safeguard patients through effective medication assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life-threatening or debilitating diseases."  

(3/10/07)- Countless individuals suffer from sleep disorders. We at therubins received an email from the Webmaster at Sleep Disorders Guide, took a look at the site, and found that it might be helpful to any or our viewers with this type of problem.

Title: Sleep Apnea - Sleep Disorders Guide
Url: http://www.sleepdisordersguide.com/sleepapnea
Description: A comprehensive information guide about sleep disorders. Descriptions, symptoms, causes, treatments of various sleep disorders like
sleep apnea, insomnia, snoring, restless legs and narcolepsy.

(2/04/07)- Wayne Lundy of the Better Information Group emailed therubins about the publication of its most recent guide, Aging with a Plan. The guide is: "A resource for families to plan for medical, financial, legal and emotional issues they will be facing with an aging family member."

(10/2/06)- We recently received an email from one of our viewers about an article she and David Petersen had written concerning a "handicapped accessible bathroom" for her grandparents. We visited the site and found it to be an excellent one. The following is a copy of the email along with a link to the site. We think you will find it quite useful for its purpose:

From: Becca Joyce
To: hrubin12@nyc.rr.com
Sent: Monday, September 25, 2006 11:33 PM

Subject: Accessible living
Hello,
I am a fan of your website and the support you provide for the elderly. In the process of designing a handicapped accessible bathroom for my grandparents, I decided to write an article with some ideas and pictures of the accessible bathroom ideas I found. I am hoping that you will post a link to my article on your website: http://www.wasauna.com/handicap-bathroom.html
Thank you!
Sincerely,
Becca Joyce
beccaj@kpxtractors.com

(10/17/05)- One of our readers wrote with a suggestion that we try to focus some of our tables on one area of information to make it easier for our readers to find that information. Following through on this suggestion, we are starting a whole series of tables that will appear from time-to-time under specific headings that will pull together many of the disparate resources we have listed in the articles on our web site. We feel quite comfortable in recommending these sites. If any of our readers knows of some reason the site should not be included in our list, as well as sites that should be included, please let us know.

A list of health information resources;

Resources

Description

Web site

PubMed/MEDLINE References including abstracts from thousands of biomedical journals http://ncbi.nlm.nih.gov/entrez/query.fcgi?DB=pubmed
Better Information Group Planning for an aging family member http://www.big-zone.com
PubMed Central Free digital archive of biomedical and life sciences journal literature http://www.pubmedcentral.gov/
Clinicaltrials.gov Patient studies for drugs and treatment http://clinicaltrials.gov
MedlinePlus Health information for patients, families, and health care practitioners http://medlineplus.gov
TOXNET Network of databases on toxicology, hazardous chemicals, and environmental health http://toxnet.nlm.nih.gov/
Unified Medical Language System Electronic knowledge sources and associated lexical programs http://nlm.nih.gov/research/umls/ulmsmain.html
National Center for Biotechnology Information Databases and tools for data mining, including BLAST and the Molecular Modeling Database http://www.ncbi.nih.gov/
GenBank An annotated collection of all publicly available DNA sequences http://ncbi.nlm.nih.gov/Genbank/GenbankSearch.html
Online Mendelian Inheritance in Man Catalog of human genes and genetic disorders http://ncbi.nlm.nih.gov/entrez/query.fcgi?db=OMIM
Cancer Genome Anatomy Project Generates the information and technological tools needed to decipher the molecular anatomy of the cancer cell http://ncbi.nlm.nih.gov/ncicgap
Organization Address Telephone Email Description
USDA Food and Nutrition Information Center (FNIC) 10301 Baltimore Ave., Room 105, Beltsville, MD 20705-2351 1-301-504-5719 www.nal.usda.gov/fnic The FNIC website provides over 2000 links to current and reliable nutrition resources.
Aging with Dignity PO Box 1661, Tallahassee, FL 32302-1661 1-888-594-7437 www.agingwithdignity.com This group provides an easy-to-read advance care planning document called Five Wishes
Centers for Disease Control and Prevention (CDC)     www.cdc.gov/aging/index.htm The CDC has resources on nutrition and physical activity for older adults
Eldercare Locator   1-800-677-1116 www.eldercare.gov The Eldercare Locator offers referrals to information on services to seniors.
Getting Around Safe & Sound and Granddriver 4301 Wilson Boulevard, Suite 400, Arlington, VA 22203 1-703-522-4200 www.aamva.org/drivers/drv_AgingDrivers.asp

www.granddrivers.info

The American association of Motor Vehicle Administrators sponsors two programs designed to educate aging drivers and their caregivers.
Medicare Rights Center 1460 Broadway

NY, NY 10036

1-212-869-3850 www.medicarerights.org Information on financial assistance
National Center on Elder Care 1201 15th St., suite 350, Washington, DC 20005-2842 1-202-898-2586 www.elderabusecenter.org This consortium of organizations provides information about and conducts research on elder abuse.
National Council on Aging     www.benefitscheck.org The council online resource offers a searchable list of programs that can help with health care costs.
National Hospice and Palliative Care Organization 1700 Diagonal Road, suite 625, Alexandria, VA 22314 1-703-647-8508
Fax-703 837 1233

1-800-658-8898

www.caringinfo.org Information on end-of-life care Many of the resources and publications that were available on the Partnership for Caring are now on this site.
National Institute of Health     www.ClinicalTrials.gov Information about federally and privately supported clinical research
National Institute on Aging (NIA) Information Center, PO Box 8057, Gaithersberg, MD 20898 1-800-222-2225

TTY: 1-800-222-4225

www.niapublications.org The NIA offers a free booklet showing older adults how to start and stick to effective program of stretching, balance, and strength-training exercises
Nursing Home Compare     www.medicare.gov/nhcompare/home.asp Medicare provides an online resource with detailed information about the past performance of every Medicare certified nursing home in the country.
Patient Advocate Foundation   1-800 532 5274 www.patientadvocate,org Mission is "to safeguard patients through effective medication assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life-threatening or debilitating diseases."
Pharmaceutical Research And Manufacturers of America (PhRMA) 1100 Fifteen St. NW, Washington, DC 20005 1-202-835-3400 www.helpingpatients.org Many pharmaceutical companies offer reduced medication fees for patients who meet income requirements and other criteria. PhRMA has compiled the Directory of Prescription Drug Patient Assistance Programs
Sexuality Information and Education Council of US 130 West 42nd St. suite 350, NY, NY 10036-7802 1-212-819-9770 www.siecus.org/pubs/biblio/bibso0012.html This organization publishes an annotated bibliography, Sexuality in Middle and Later Life.
The Simon Foundation for Incontinence Box 835-F, Wilmette, IL 60091 1-800-237-4666 www.simonfoundation.org/htm The Foundation provides information about cure, treatment, and management techniques for incontinence
Family Caregiver Alliance 690 Market St., suite 500, San Francisco, CA 94104 1-415-434-3388 www.caregiver.org The Alliance offers programs to support and sustain caregivers
Alzheimer’s Disease Education and Referral Center (ADEAR) PO Box 8250, Silver Spring, MD 20907-8250 1-800-438-4380 www.alzheimers.org NIA funds ADEAR to provide information, publications, referrals, a health information database, and a clinical trials database for the public and health care professionals

 

FOR AN INFORMATIVE AND PERSONAL ARTICLE ON PRACTICAL SUGGESTIONS WHEN SELECTING A NURSING HOME SEE OUR ARTICLE "HOW TO SELECT A NURSING HOME". 

Compiled by Harold Rubin, MS, ABD, CRC, Guest Lecturer
updated July 3, 2008


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