Ethical Care for People with Alzheimer’s Disease

Ethical Care for People with Alzheimer’s Disease-Part IX

(10/16/12)- We at therubins received this email from Marylyn, visited the site she and the intern referred to and found it to be a very helpful and informative. We, the editors of this site are more than willing to help anyone with helpful information in the battle against Alzheimer's Disease and will do all we possibly can to support this effort. Thank you Marylyn and the intern she refers to in the email.

Attached email message ---
From: marylyn@valleybookclub.com
Subject: Quick Question for the Ethical Care for people with Alzheimers Disease
To: hrubin12@nyc.rr.com
Date: Mon, 15 Oct 2012 12:11:44 -0400

Good morning,
My name is Marylyn and I'm a volunteer librarian. I hope it's okay I'm reaching out to you via email. The reason I'm writing today is because I've been working on creating a section for seniors on our new library website (soon to be live).
Your page (http://therubins.com/alzheim/alzethic.htm) was one that my student intern found for me to use in the senior health section. I just thought you'd like to hear that :)
She also found this other page that I thought might be a good fit for your website.
Alzheimer's and Dementia Learning Center - (http://www.drugcoupons.com/blog/alzheimers-and-dementia-learning-center.html)
If you like it, would you mind including it? I'd like to show her if you add it. It would be a great motivator since she's an unpaid intern and is doing a great job! Thanks, I really appreciate it. Give me a shout back if you include it.
Have a good one,
Marylyn Brooks

(11/29/10)- Here is another email that we at therubins recently received from Nathan Grimm, Program Manager- SR Education Group in which he refers to an excellent article that was recently published to help gain more knowledge about Alzheimer's Disease and the resources available for family and firends-

Friday, November 19, 2010 2:54 PM

Subject Info for Alzheimer Patients

Dear Harold Rubin, MS, ABD, CRC

I really appreciate your collection of resources on the TheRubins.com website, http://www.therubins.com/aging/resources3.htm . It is great that as a site for senior citizens and those who care about them, you provide information on topics pertinent to the elderly so that readers will be able to make more informed decisions about the problems associated with the elderly.

We just published an article that has all the best information for people who have or know someone with Alzheimer's, http://www.guidetohealthcareschools.com/library/alzheimers-patient

The article would be a valuable addition to your information. I hope it helps everyone who uses your site to research Alzheimer's.

Sincerely,

Nathan Grimm
Program Manager - SR Education Group
Twitter" @n8ngrimm
(425) 605-8898 123
Lake Street South Suite B-1
Kirkland, WA 98033

(11/2/10)- We at therubins recently received the following email from Will, and would like to thank him for taking the time to send the message on to us, and since the site he refers to is really an excellent source for information about Alzheimer's Disease we would like to pass it on to our viewers.

"I've used your site a great deal in helping my wife with Alzheimer's, and I wanted to pass along one other article that's been very useful to me: http://assistedlivingway.com/w/alzheimers-resources

Maybe someone else will find it helpful as well.

Thanks for your time,
Will"

(3/21/2000)- Writing articles for this web site has made us acutely aware of the needs of the elderly in our society. As the baby boomers mature and reach their senior years, the system of health delivery is going to be greatly taxed and will endeavor to come up with "creative " methods to meet the demands. There is no doubt that new technology and medications will aid in enhancing the services given to the elderly. But will the stigma of old age be erased and will the aged bear the scrutiny of budget analysts and related policy makers? With this in mind, we would suggest that our readers make themselves more familiar with ethical principles that do not consign individuals to a "natural" process that is inevitable and unchangeable.

Along these lines, we recommend reading the Benbow and Reynolds article in Hospital Medium, March 2000, 61(3): 174-177 entitled "Challenging the Stigma of Alzheimer’s Disease." This is a philosophical paper stressing a humanistic approach to treatment of Alzheimer’s disease.

In discussing aging, they point up "the stigma of old age is such that memory problems may be assigned to dementia without investigation, as if dementia is a natural component of the aging process." Their core point is that health-care professionals need to tailor their level of care to the individual, not assuming that things are unchangeable. Treating personnel need to "determine changes in function [that] can be identified, rather than inevitable deterioration being assumed, assessment must involve obtaining information about the person’s function before and during their hospital admission." They stress this concept time after time: "If health-care professionals attempt to be sensitive to their own prejudices and those of others, they will be open to other ways of understanding the "problem" of Alzheimer’s disease, which do not seem then as part of an inevitable decline…and not assume that people with a diagnosis of AD lack the capacity to make any decisions.".

They cite, from Post’s book entitled The Moral Challenge of Alzheimer’s Disease (John’s Hopkins University Press), six principles of ethical care of people with Alzheimer’s disease that we think is worth repeating:

Something can be done with people with AD.

Many factors cause excess disability among individuals with AD. Identifying and changing these factors will reduce excess disability and improve the person’s function and quality of life.

People with AD have residual strengths. Building on these strengths will improve the individual's function and quality of life.

People with AD express understandable feelings and needs through their behavior and responding to those feelings and their needs will reduce behavior problems.

Aspects of social and physical environment affect function of people with AD. Appropriate environments will improve an individual’s function and quality of life.

Addressing the needs of individuals with AD and the needs of their families and involving families in the care of individuals with AD, will benefit all concerned.

After Post ((1995)

Finally, Benbow and Reynolds suggest the following "actions points" for treating health-care professionals.

Diagnose and treat medical/surgical conditions
Establish an accurate diagnosis of a dementia
Establish a functional baseline. (They note that in a hospital individuals tend to function below their baselines "because of the different environment and change in their routine.")
Involve the individual and respect their wishes.
Involve the family and respect their wishes
Changing attitudes/challenge negative views.

Many of us may someday be in the position of being diagnosed with a dementia. We would want to be treated with dignity and respect. It is up to us to set an atmosphere that is reasonable and applicable to the needs of those with dementia by making sure ethical principles and action points like those cited above are part of permanent treatment protocols.

References:

Benbow, Susan M. & Reynolds, David. Challenging the stigma of Alzheimer’s disease. Hospital Medium 2000;61(3):174-177

Post SG (1995) The Moral Challenge of Alzheimer’s Disease. The John’s Hopkins University Press: Baltimore and London.

FOR AN INFORMATIVE AND PERSONAL ARTICLE ON PRACTICAL SUGGESTIONS WHEN SELECTING A NURSING HOME SEE OUR ARTICLE "HOW TO SELECT A NURSING HOME"

By Harold Rubin, MS, ABD, CRC, Guest Lecturer
October 16, 2012

email: hrubin12@nyc.rr.com or rubin@brainlink.com

See: Alzheimer's Disease Part I-Medications for Alzheimer's.
See: Alzheimer’s Disease Part II- Selegiline and AD.
See: Alzheimer's Disease Part III- Use of Gingko Biloba in memory problems of Alzheimer patients.
See: Alzheimer's Disease PartIV-Alternative Treatment.
See: Alzheimer's Disease Part V-Possible New Drugs for Alzheimer's Disease Treatment.
See: Alzheimer's Part VI -Early Diagnosis.
See: Alzheimer's Part VII -New Medication-Metrifonate
See:Alzheimer's Disease PartVIII - Implications of Longer Life Expectancies
See: Alzheimer's Disease Part X-Estrogen and Alzheimer's Disease
See: Alzheimer's Disease Part XI-Pocket Smell Test (PST)
See: Alzheimer's Disease Part XII-MAO-B
See: Alzheimer's Disease Part XIII-Critical Flicker Fusion Threshold Test
See: Alzheimer's Disease Part XIV-Donepezil
See: Alzheimer's Disease Part XV-Cerebrolysin
See: Alzheimer's Disease Part XVI-MCI
See: Alzheimer's Disease Part XVII-Summary
See: Alzheimer's Disease Part XVIII-NO Releasing NSAIDs
See: Alzheimer's Disease Part XIX-Vitamin E
See: Alzheimer's Disease-Part XX-Clinical Trials
See: Alzheimer's Disease Part XXI-The Brain
See Dementia with Lewy Bodies- Part XXII-by Gourete Broderick
See: Alzheimer's Disease-Part XXIII-HMG
See: Alzheimer's Disease-Part XXIV-A Prequel
See: Alzheimer's Disease-Part XXV-Psychosis
See: Alzheimer's Disease-Part XXVI-Amyloid-beta Hypothesis Controversy
See: Alzheimer's Disease-Part XXVII- AD and Diabetes
See: Alzhemeir's Disease-Part XXVIII - Insulin and AD

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